Experiences with health care professionals: sharing your story
Carrie Dickson, MS, APRN, CNM, CNE, a doctor of nursing practice student from Minnesota State University in Mankato, is working with AuSM to gather personal stories from people with autism on their experiences with health care professionals. From now through April 15, Dickson is seeking stories from self-advocates with autism, parents, caregivers, and direct support staff about positive and negative interactions within the general health care system, including, but not limited to, emergency room visits, clinics, dentist offices, paramedics, hospitals, ophthalmologist offices, etc.
Stories are being accepted in the following forms:
Writing (with or without a picture of you)
Short video (2-4 minutes)
Audio recording (2-4 minutes)
Picture of you holding a sign that has a legible, written account of your brief story
As you work on your story, please consider these questions:
What kind of health care did my experience involve?
What did the health care provider do right/wrong?
How did the health care provider’s actions affect my experience?
What could the health care provider have done differently to affect the outcome?
The stories provided by the Minnesota autism community will be used to start a conversation with health care providers about quality core health care for individuals on the autism spectrum of all ages and their families, caregivers, and direct support staff. Stories may be posted on the AuSM website, the Health Professions Autism Network website (a new community for providers on health care for individuals with autism), and/or shared on social media. By submitting your story, you give the Autism Society of Minnesota (AuSM) and/or Health Professions Autism Network (HPAN) permission to publish your submission without incurring any liability to AuSM or HPAN. The materials may include, but are not limited to, newsletters, annual reports, brochures, advertisements, websites, social media sites, training materials, and/or posters.