logo

Find AuSM on Facebook  twitterbird YouTubeSubscribe to our RSS feed 

  • Home
  • Give
  • Research Studies

Seeking Young Adults on the Autism Spectrum to Volunteer for a Research Study

My name is Allison Brenneise.  In addition to being a mother to two young men at varying places on the spectrum, I am a graduate student at SIU working on a research study about the social experiences and relationships of young adults with an autism spectrum disorder.  I am currently conducting a research study relevant to individuals with autism.

The purpose of this study is to learn more about the social experiences and relationships of young adults with an autism spectrum disorder (ASD) from the perspective of the young adult. Young adults who participate in this study will have an opportunity to communicate their experiences in and about social relationships and further the collective understanding of what young adults with an ASD want and need from social experiences.  They may also benefit from contributing to a field which currently does not publish much, if anything, about the experiences of young adults with an ASD from their own perspective.

Any person who meets the following criteria may be eligible:

1) has the legal authority to make decisions about engaging in research relationships

2) is between 18 years -35 years of age

3) has documented evidence of having an autism spectrum disorder.

I will be in Minneapolis on March 11, 2017, through March 18, 2017, conducting interviews and am scheduling now. I look forward to speaking with people who may be interested in participating in this study during that time.  Participation in the study consists of two or three face to face meetings lasting up to two hours each, involving questions and answers.  I am available by telephone or text at 858-461-8699, e-mail or Skype chat at This email address is being protected from spambots. You need JavaScript enabled to view it., or via direct message on Twitter @ABrenneise.

Parents of Adults with Autism Survey

As a doctoral candidate at Lamar University, I am conducting a study for my dissertation to better understand the relationship between various parental factors which may impact the successful employment outcomes of adults with Autism Spectrum Disorders. The purpose of this study is to investigate the relationship between parental factors and the successful employment of adults, age 26 or older, diagnosed with Autism Spectrum Disorder (ASD) in the United States. I plan to use this information to develop higher-quality, research-based parent training programs aimed at providing parents the tools they need to help their children with Autism Spectrum Disorder obtain and maintain employment. The results should be of interest and value to parents, educators, related professionals, and any other professionals who work with individuals with Autism and their families.

I hope to have at least 88 parents from across the country participate in this study. Criteria for participation include the following: 
The participants must be a parent of an adult, age 26 or older, diagnosed with Autism Spectrum Disorder by a licensed professional.
The participants must also have current knowledge of their adult’s employment status.

Your responses are confidential and your name will not be associated with any research findings. In addition, no names or other identifying information will be collected in the survey. The data will be stored electronically in a secure manner. This study has been approved by the Lamar University Institutional Review Board. You are free to decide not to participate in this study or to withdraw at any time without adversely affecting your relationship with the investigator or Lamar University. There is no compensation to participate in this study; however, benefits of participation may include a contribution to scholarly research, as well as direct benefits to the subjects through the provision of the study’s summary and recommendations regarding how parents can best support their children with Autism Spectrum Disorders to obtain and maintain employment.

If, after reading the above information, you would like to participate in the study, please go to the following link to sign the electronic consent form and access the survey through Survey Monkey:
https://www.surveymonkey.com/r/PFWPASD

If you have any questions regarding the study, please contact the Principal Researcher or the Dissertation Chair.
Sincerely,
James Williams, MRC, CRC
Principal Researcher
This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. Ken Young
Dissertation Chair
This email address is being protected from spambots. You need JavaScript enabled to view it.

Working Together Study

We are recruiting for an education and support program for families of young adults with ASD. Adults with ASD and their parents will attend weekly group meetings with other families to receive information on planning for independence, coping strategies, and other topics. Problem solving strategies will be taught to address specific concerns. The study will consist of initial and exit interviews for young adults with ASD and their parents and 8 weekly group sessions held in Minneapolis at the UMN Autism Clinic.

To participate, the adult with ASD must be between 18 and 30 years of age and live with their parents, have finished high school, and have less than 20 hours per week of classes and work combined. Adults with ASD must not be diagnosed with an intellectual disability.

To find out more, please contact
Dr. Rebekah Hudock at the University of Minnesota ASD Clinic
(612) 626-3538 or
This email address is being protected from spambots. You need JavaScript enabled to view it..

Experience of Parenting a Child with Autism Spectrum Disorder (ASD)

Hello, my name is Rebecca Glover and I am a graduate student at Washington State University in the psychology department. I am conducting research on the experiences of parenting a child with autism spectrum disorder (ASD) for my master’s thesis. I am inviting caregivers (e.g., biological parent, stepparent) of one child with ASD ages 4 to 10 years to participate. You may take part in this study if you have other children without ASD. Only one caregiver per household may complete the study.

Participation in this research includes taking two online surveys. You will be asked to take one survey now and then a second survey in one year. Each survey will take approximately 1.5 - 2 hours, for a total of about 3 - 4 hours for the entire study.

You will receive a $10.00 gift card from your choice of Walmart, Target, or Amazon for completing each part of this study, resulting in a total of two $10.00 gift cards. If you decide to quit the study you will not receive a gift card. Gift cards will be delivered either electronically via email or physically mailed to your home. If you receive payment for taking part in this study, you will be asked to provide your home address and email address.

If you have any questions or would like to participate in the research, I can be reached at This email address is being protected from spambots. You need JavaScript enabled to view it.. Please feel free to share this information with any families that may be interested in participating in this study. This study has been approved for human subject participation by the Washington State University Institutional Review Board.