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Study Exploring Communication with Parents and Health Care Providers

Has your child been diagnosed with autism spectrum disorder (ASD) in the last 12 months?

We are looking for parents whose child has been diagnosed with ASD in the last 12 months. We are conducting a study to learn more about parents’ experiences communicating with health care providers during the time when their child was first identified with developmental concerns to when their child was diagnosed with ASD.

You may be eligible to participate if you:

  1. are the parent of a child between the ages of 18 months-6 years who was diagnosed with autism spectrum disorder in the last 12 months.
  2. are 18 years or older.
  3. speak English.
  4. are willing to be interviewed via phone or through videoconferencing.  To interview via videoconferencing, you must have access to a computer with one of the following videoconferencing technologies: FaceTime, Google Hangouts, or Skype.  The computer requires video and microphone capabilities and a high-speed internet connection. 

If you are interested and eligible to participate in this study, we will ask you to:

  1. participate in one interview (via phone or video-conferencing) that will last for about 30-60 minutes.
  2. complete a short, online survey that will take about 10-15 minutes. 

Participants who complete the interview and the survey will receive a $50 electronic Amazon gift card. 
Please feel free to share this posting with other families you think might be interested in participating in the study. 

If you are interested in participating or wish to receive more information, please contact:
Lynnea Myers, PhD(c), RN, CPNP at:
This email address is being protected from spambots. You need JavaScript enabled to view it. or 952-451-7790

This study has been approved by the Institutional Review Board at Vanderbilt University, Nashville, TN - 615-322-2918 or toll free at 1-866-224-8273.

Experience of Parenting a Child with ASD

Seeking parents to be part of a research study through Washington State University psychology department. 

  • Parents will complete two online surveys,
  • Each survey should take about 1.5 - 2 hours to complete
  • Parents will receive a $10.00 gift card from their choice of Walmart, Target, or Amazon for each survey completion
  • Parents must be at least 18 years old
  • Children with ASD must be ages 4 – 10 years
  • Parents cannot have more than one child diagnosed with ASD, but can have other children without ASD
  • Please share this survey with any interested families
  • Please contact Rebecca Glover at for more information and to participate: This email address is being protected from spambots. You need JavaScript enabled to view it.

Wandering in Children with ASD

My name is Laura McLaughlin, and I am a research assistant at Cohen Children’s Medical Center of New York, where I work with Dr. Andrew Adesman. I am writing to seek participants for our on-going study looking at the important issue of wandering by children with autism spectrum disorders.

Parents of children with ASD and other developmental disabilities can complete an anonymous on-line questionnaire found at www.WanderingResearch.com. All responses are anonymous and no personal health information is solicited. The information provided will be used to help children with ASD and other developmental disabilities get the service and support they need.

Examining the relationship between stigma and self-esteem, self-efficacy, and social satisfaction in young adults with autism spectrum disorder

You have been invited to take part in a research study called "Examining the relationship between stigma and self-esteem, self-efficacy, and social satisfaction in young adults with autism spectrum disorder", which is being conducted by Dr. Ashley Johnson Harrison, Kathryn Bangs, M.A., and Margaret Naughton from the College of Education at The University of Georgia. Please read this document completely to decide if you agree to take part in the research study. You must be at least 18 years old to participate. Participation is voluntary, and you can refuse to participate or stop taking part in the research study at any time without penalty or giving any reason. You can ask to have your information removed from the research records.

The purpose of this study is to find out about how young adults with autism spectrum disorder function in post-secondary education and professional settings and what methods of support should be put in place to best meet their needs. We are also interested in the way that having autism may impact the way they interact with others and the way others interact with them.

You will not benefit directly from our research; however, your participation may lead to a better understanding of how to serve young adults with autism spectrum disorders. The procedures involve taking a 20-30 minute survey.

The research study is not expected to cause any harm or discomfort. If you experience any discomfort, you are encouraged to let the researchers know immediately.

All of the information that you give will be confidential. No one outside of our research group will have access to the results as all data will be kept in a secured location. Your identity will be assigned a code, and the list linking names with identifier codes will be destroyed at the end of data collection. Reports will never include your name.

To take the survey, please click here: https://ugeorgia.qualtrics.com/jfe/form/SV_9T7pzPaSDqUg0Vn

If you have any questions please contact either Kathryn Bangs, M.A. (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Ashley Johnson Harrison, Ph.D. (This email address is being protected from spambots. You need JavaScript enabled to view it.) at 706-542-7512.

Wandering: Prevention Strategies and IMpact on Families

Wandering by children with ASD and other developmental disorders is a significant safety concern. It is estimated that more than 250,000 children with disabilities wander away from adult supervision each year. Few researchers have looked at this major issue, and there has been little focus on prevention measures and the impact that wandering concerns have on families.

Cohen Children’s Medical Center of New York is conducting a major national study about wandering, and we very much want you to participate.

It takes just a few minutes to complete the anonymous, on-line questionnaire. If enough families complete our questionnaire, then:

• We will have the most representative study done to date – giving voice to as many families as possible
• We can help guide families like yours about which prevention strategies seem to be most effective
• We can document the impact that wandering has on families in terms of activities and household stress

Please click HERE to complete the survey. You may also go to www.WanderingResearch.com to take the survey, request a copy of our results, and be contacted regarding a follow-up research project related to wandering.

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