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Wandering in Children with ASD

My name is Laura McLaughlin, and I am a research assistant at Cohen Children’s Medical Center of New York, where I work with Dr. Andrew Adesman. I am writing to seek participants for our on-going study looking at the important issue of wandering by children with autism spectrum disorders.

Parents of children with ASD and other developmental disabilities can complete an anonymous on-line questionnaire found at www.WanderingResearch.com. All responses are anonymous and no personal health information is solicited. The information provided will be used to help children with ASD and other developmental disabilities get the service and support they need.

Examining the relationship between stigma and self-esteem, self-efficacy, and social satisfaction in young adults with autism spectrum disorder

You have been invited to take part in a research study called "Examining the relationship between stigma and self-esteem, self-efficacy, and social satisfaction in young adults with autism spectrum disorder", which is being conducted by Dr. Ashley Johnson Harrison, Kathryn Bangs, M.A., and Margaret Naughton from the College of Education at The University of Georgia. Please read this document completely to decide if you agree to take part in the research study. You must be at least 18 years old to participate. Participation is voluntary, and you can refuse to participate or stop taking part in the research study at any time without penalty or giving any reason. You can ask to have your information removed from the research records.

The purpose of this study is to find out about how young adults with autism spectrum disorder function in post-secondary education and professional settings and what methods of support should be put in place to best meet their needs. We are also interested in the way that having autism may impact the way they interact with others and the way others interact with them.

You will not benefit directly from our research; however, your participation may lead to a better understanding of how to serve young adults with autism spectrum disorders. The procedures involve taking a 20-30 minute survey.

The research study is not expected to cause any harm or discomfort. If you experience any discomfort, you are encouraged to let the researchers know immediately.

All of the information that you give will be confidential. No one outside of our research group will have access to the results as all data will be kept in a secured location. Your identity will be assigned a code, and the list linking names with identifier codes will be destroyed at the end of data collection. Reports will never include your name.

To take the survey, please click here: https://ugeorgia.qualtrics.com/jfe/form/SV_9T7pzPaSDqUg0Vn

If you have any questions please contact either Kathryn Bangs, M.A. (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Ashley Johnson Harrison, Ph.D. (This email address is being protected from spambots. You need JavaScript enabled to view it.) at 706-542-7512.

Wandering: Prevention Strategies and IMpact on Families

Wandering by children with ASD and other developmental disorders is a significant safety concern. It is estimated that more than 250,000 children with disabilities wander away from adult supervision each year. Few researchers have looked at this major issue, and there has been little focus on prevention measures and the impact that wandering concerns have on families.

Cohen Children’s Medical Center of New York is conducting a major national study about wandering, and we very much want you to participate.

It takes just a few minutes to complete the anonymous, on-line questionnaire. If enough families complete our questionnaire, then:

• We will have the most representative study done to date – giving voice to as many families as possible
• We can help guide families like yours about which prevention strategies seem to be most effective
• We can document the impact that wandering has on families in terms of activities and household stress

Please click HERE to complete the survey. You may also go to www.WanderingResearch.com to take the survey, request a copy of our results, and be contacted regarding a follow-up research project related to wandering.

Assistive Technology Survey

A group of 5 undergraduate Computer Science students from the University of Minnesota - Twin Cities is researching and designing an assistive technology for children on the Autism spectrum and their families. They are seeking families willing to fill out a short survey. The information they gather will inform our design and development of a new assistive tech that better meets these families needs.

To fill out the survey, please click here.