You have been invited to take part in a research study called "Examining the relationship between stigma and self-esteem, self-efficacy, and social satisfaction in young adults with autism spectrum disorder", which is being conducted by Dr. Ashley Johnson Harrison, Kathryn Bangs, M.A., and Margaret Naughton from the College of Education at The University of Georgia. Please read this document completely to decide if you agree to take part in the research study. You must be at least 18 years old to participate. Participation is voluntary, and you can refuse to participate or stop taking part in the research study at any time without penalty or giving any reason. You can ask to have your information removed from the research records.
The purpose of this study is to find out about how young adults with autism spectrum disorder function in post-secondary education and professional settings and what methods of support should be put in place to best meet their needs. We are also interested in the way that having autism may impact the way they interact with others and the way others interact with them.
You will not benefit directly from our research; however, your participation may lead to a better understanding of how to serve young adults with autism spectrum disorders. The procedures involve taking a 20-30 minute survey.
The research study is not expected to cause any harm or discomfort. If you experience any discomfort, you are encouraged to let the researchers know immediately.
All of the information that you give will be confidential. No one outside of our research group will have access to the results as all data will be kept in a secured location. Your identity will be assigned a code, and the list linking names with identifier codes will be destroyed at the end of data collection. Reports will never include your name.
To take the survey, please click here: https://ugeorgia.qualtrics.com/jfe/form/SV_9T7pzPaSDqUg0Vn
Wandering by children with ASD and other developmental disorders is a significant safety concern. It is estimated that more than 250,000 children with disabilities wander away from adult supervision each year. Few researchers have looked at this major issue, and there has been little focus on prevention measures and the impact that wandering concerns have on families.
Cohen Children’s Medical Center of New York is conducting a major national study about wandering, and we very much want you to participate.
It takes just a few minutes to complete the anonymous, on-line questionnaire. If enough families complete our questionnaire, then:
• We will have the most representative study done to date – giving voice to as many families as possible
• We can help guide families like yours about which prevention strategies seem to be most effective
• We can document the impact that wandering has on families in terms of activities and household stress
Please click HERE to complete the survey. You may also go to www.WanderingResearch.com to take the survey, request a copy of our results, and be contacted regarding a follow-up research project related to wandering.