INVITATION TO PARTICIPATE IN WEB-BASED SURVEY
Researchers at the University of Wisconsin – Madison are conducting a study about caregiver and family quality of life for caregivers of children with Autism Spectrum Disorder (ASD). The study will look at caregiver roles and how they impact caregiver relationship satisfaction and caregiver mastery. We want to understand how these factors impact the quality of life for the caregiver and how the caregiver perceives they impact their family’s quality of life.
WHO: You are eligible to participate if you are a caregiver of a child with ASD. Child has been defined as a dependent who is younger than the age of 18. Caregivers will be viewed more widely, as we know that not all caregivers are the biological parents of a child, therefore individuals (e.g. stepparents, foster parents, guardians) who identify as a primary caregiver of a child with ASD qualify.
WHAT: Participant will complete 1 online survey. The survey consists of one demographics questionnaire and seven additional scales that will look more closely at the caregiver role impact, caregiver relationship satisfaction, caregiver mastery, caregiver quality of life, and family quality of life.
HOW: Please go to the following website to participate:
COMPENSATION: There will be no compensation for your participation in this study. However, your participation allows for the field to better understand the lives of caregivers with children with ASD.
Thank you in advance for your participation in this important study!
Participate in a survey for parents and other family caregivers and enter a raffle to win one of at least ten $20 gift cards. The survey is open through April 15, 2017.
The survey is open to parents, siblings, or other family caregivers who are the primary caregiver for a family member with Autism Spectrum Disorder, Intellectual Disability, or Developmental Disability.
Researchers at Illinois Institute of Technology (IIT) are interested in the experiences of parents and other family caregivers of transition age youth with Autism Spectrum Disorder (ASD), Intellectual Disability (ID), and/or Developmental Disability (DD). You are invited to participate in a 45-60 minute survey about caregiver experiences and wellbeing.
You are eligible to participate if:
• You are 18 years old or older
• You are the primary caregiver for a family member with ASD, ID, or DD
• The family member you care for is between 13-25 years old
All participants will have the opportunity to enter a raffle to win one of several $20 gift cards.
Click here to access the survey.
We are researchers in the Department of Applied Behavioral Science at the University of Kansas. You are invited to complete a survey that will help us understand the concerns that people have with respect to privacy when using technology to provide services to people with disabilities (physical, intellectual, sensory, or developmental). The survey involves a brief demographic questionnaire, a 2-minute video, and a short questionnaire that will take 1-2 minutes to complete. The survey may be accessed by clicking here.
Thank you, in advance, for your participation in this survey!
Denys Brand, Ph.D.
Florence D. DiGennaro Reed, Ph.D., BCBA-D
I am a Speech-Language Pathologist and PhD Candidate at the University of Minnesota, Twin Cities. I am currently working on recruiting families of children with autism spectrum disorder to participate in my dissertation research study. I would value the opportunity to provide information to families via the research page of the AUSM website.
Here is a bit more about my study:
Broadly, my dissertation project examines how preschool age children with autism spectrum disorder initiate requests for communicative repair during a shared book reading activity and how their performance compares to their typically developing peers.
Who can participate?
Children who are:
- 4 years; 0 months - 4 years; 11 months
- medical diagnosis of ASD
- expressive and receptive language skills within an average range
- cognitive skills within an average range
- monolingual English language speakers
Participants who are likely to meet inclusion criteria will be those whose primary challenges are social communication skills but whose structural language does not differ significantly from their peers.
What will participants be asked to do?
Participants will be asked to complete two research sessions. During the first session, they will take two standardized assessments to measure their expressive and receptive language skills and nonverbal cognitive skills. Participants will also have their hearing screened and complete a very short (~5 min) criterion-referenced assessment of their perspective-taking skills. During the second session, participants will complete a shared book reading activity with me. During the book reading, we will read the book and I will ask the child some questions about the story. We will also play with some objects related to the book and look at and talk about the pictures in the book. This activity will last about 20 minutes.
What about parents?
Parents will be asked to complete to surveys related to their child's development, across domains, including their social skill development.
Where will the research sessions take place?
We would like to conduct the research sessions where it is most convenient for the participants and their families. Many families choose to have the sessions at their home but some families have completed them at their preschool or clinic where they receive services.
If families are interested in participating or have questions about the study, they can contact me directly: