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Online Survey for Caregivers of Individuals with Autism

Researchers at the University of Wisconsin – Madison are conducting a study about caregiver and family quality of life for caregivers of children with Autism Spectrum Disorder (ASD). The study will look at caregiver roles and how they impact caregiver relationship satisfaction and caregiver mastery. We want to understand how these factors impact the quality of life for the caregiver and how the caregiver perceives they impact their family’s quality of life.
WHO: You are eligible to participate if you are a caregiver of a child with ASD. Child has been defined as a dependent who is younger than the age of 18. Caregivers will be viewed more widely, as we know that not all caregivers are the biological parents of a child, therefore individuals (e.g. stepparents, foster parents, guardians) who identify as a primary caregiver of a child with ASD qualify.

WHAT: Participant will complete 1 online survey. The survey consists of one demographics questionnaire and seven additional scales that will look more closely at the caregiver role impact, caregiver relationship satisfaction, caregiver mastery, caregiver quality of life, and family quality of life.

HOW: Please go to the following website to participate:


COMPENSATION: There will be no compensation for your participation in this study. However, your participation allows for the field to better understand the lives of caregivers with children with ASD.

QUESTIONS: If you have any difficulty with the link or if you would like additional information, please contact Kerry Thompson, Ed.S., M.S., NCC, by email at This email address is being protected from spambots. You need JavaScript enabled to view it., and she will be happy to assist you.

Thank you in advance for your participation in this important study!