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Survey for Caregivers of Individuals with Autism

Participate in a survey for parents and other family caregivers and enter a raffle to win one of at least ten $20 gift cards. The survey is open through April 15, 2017.
The survey is open to parents, siblings, or other family caregivers who are the primary caregiver for a family member with Autism Spectrum Disorder, Intellectual Disability, or Developmental Disability.
Researchers at Illinois Institute of Technology (IIT) are interested in the experiences of parents and other family caregivers of transition age youth with Autism Spectrum Disorder (ASD), Intellectual Disability (ID), and/or Developmental Disability (DD). You are invited to participate in a 45-60 minute survey about caregiver experiences and wellbeing.
You are eligible to participate if:
• You are 18 years old or older
• You are the primary caregiver for a family member with ASD, ID, or DD
• The family member you care for is between 13-25 years old
All participants will have the opportunity to enter a raffle to win one of several $20 gift cards.
Click here to access the survey.

Consumer Privacy and Residential Service

We are researchers in the Department of Applied Behavioral Science at the University of Kansas. You are invited to complete a survey that will help us understand the concerns that people have with respect to privacy when using technology to provide services to people with disabilities (physical, intellectual, sensory, or developmental). The survey involves a brief demographic questionnaire, a 2-minute video, and a short questionnaire that will take 1-2 minutes to complete. The survey may be accessed by clicking here

Thank you, in advance, for your participation in this survey!

Best,

Denys Brand, Ph.D.
Principal Investigator

Florence D. DiGennaro Reed, Ph.D., BCBA-D
Faculty Supervisor

Communicative Repair Produced by Preschoolers With and Without Autism Spectrum Disorder

I am a Speech-Language Pathologist and PhD Candidate at the University of Minnesota, Twin Cities. I am currently working on recruiting families of children with autism spectrum disorder to participate in my dissertation research study. I would value the opportunity to provide information to families via the research page of the AUSM website.

Here is a bit more about my study:

Broadly, my dissertation project examines how preschool age children with autism spectrum disorder initiate requests for communicative repair during a shared book reading activity and how their performance compares to their typically developing peers.

Who can participate?

Children who are:
- 4 years; 0 months - 4 years; 11 months
- medical diagnosis of ASD
- expressive and receptive language skills within an average range
- cognitive skills within an average range
- monolingual English language speakers

Participants who are likely to meet inclusion criteria will be those whose primary challenges are social communication skills but whose structural language does not differ significantly from their peers.

What will participants be asked to do?

Participants will be asked to complete two research sessions. During the first session, they will take two standardized assessments to measure their expressive and receptive language skills and nonverbal cognitive skills. Participants will also have their hearing screened and complete a very short (~5 min) criterion-referenced assessment of their perspective-taking skills. During the second session, participants will complete a shared book reading activity with me. During the book reading, we will read the book and I will ask the child some questions about the story. We will also play with some objects related to the book and look at and talk about the pictures in the book. This activity will last about 20 minutes.

What about parents?

Parents will be asked to complete to surveys related to their child's development, across domains, including their social skill development.

Where will the research sessions take place?

We would like to conduct the research sessions where it is most convenient for the participants and their families. Many families choose to have the sessions at their home but some families have completed them at their preschool or clinic where they receive services.

If families are interested in participating or have questions about the study, they can contact me directly:

Hannah Julien
612-670-8655
This email address is being protected from spambots. You need JavaScript enabled to view it.

New intervention study for young adults with ASD!

We are looking for families to participate in a study about programming for young adults with autism spectrum disorder (ASD). The study has two goals: 1) promote the development of advocacy and social skills in young adults with an autism spectrum disorder (ASD) 2) enable families to support their adult children in achieving educational and employment goals.

To participate, individuals with ASD must meet the following criteria:
• the adult must provide ASD diagnosis documentation (either from a health care or educational professional)
• the adult with ASD has not been diagnosed with an intellectual disability
• the adult must be 18-30 years old
• the adult must live at home with his or her parent(s)
• the adult works less than 10 hours per week
• the adult spends less than 20 hours a week in work and in degree-seeking post-secondary education program

To find out more, please contact Dr. Rebekah Hudock at 612-626-3538 or This email address is being protected from spambots. You need JavaScript enabled to view it.

Click Here for additional information on this study and other intervention services available through UMN.

Seeking Young Adults on the Autism Spectrum to Volunteer for a Research Study

My name is Allison Brenneise.  In addition to being a mother to two young men at varying places on the spectrum, I am a graduate student at SIU working on a research study about the social experiences and relationships of young adults with an autism spectrum disorder.  I am currently conducting a research study relevant to individuals with autism.

The purpose of this study is to learn more about the social experiences and relationships of young adults with an autism spectrum disorder (ASD) from the perspective of the young adult. Young adults who participate in this study will have an opportunity to communicate their experiences in and about social relationships and further the collective understanding of what young adults with an ASD want and need from social experiences.  They may also benefit from contributing to a field which currently does not publish much, if anything, about the experiences of young adults with an ASD from their own perspective.

Any person who meets the following criteria may be eligible:

1) has the legal authority to make decisions about engaging in research relationships

2) is between 18 years -35 years of age

3) has documented evidence of having an autism spectrum disorder.

I will be in Minneapolis on March 11, 2017, through March 18, 2017, conducting interviews and am scheduling now. I look forward to speaking with people who may be interested in participating in this study during that time.  Participation in the study consists of two or three face to face meetings lasting up to two hours each, involving questions and answers.  I am available by telephone or text at 858-461-8699, e-mail or Skype chat at This email address is being protected from spambots. You need JavaScript enabled to view it., or via direct message on Twitter @ABrenneise.