Project BASE: Behavior and Sensory Experiences

Researchers at the University of Minnesota, Twin Cities are seeking research participants for a follow-along study looking at characteristics associated with early sensory issues that may help improve early identification, intervention, and prevention of behavior problems among kids with developmental delay.

You and your child may be eligible for this study if:

  • Your child is between 1 and 5 years of age and has been diagnosed with any syndrome or disorder associated with developmental delay, such as Down syndrome, Tuberous sclerosis, fragile X syndrome, or fetal alcohol spectrum disorder, or with global developmental delay, and;
  • Your child has delays in two or more areas of development, such as language and communication, fine and gross motor, self-care, or leisure skills.

The purpose of the study is to understand how early developmental experiences impact development of behavior problems in young children with developmental delay by following kids and their families over an important developmental period. The study is designed to be flexible, and study activities can be completed in your own home. The study is expected to last up to 5 years, but you will have the choice to discontinue your participation at any time.

The study includes two components:

1. Interviews and questionnaires about your child’s behavior and development. This will be a combination of phone interviews and online questionnaires that will take about an hour to complete and can be completed in your home. This will be repeated on an annual basis, as long as you choose to continue with the study. You would receive a $25 gift card for completing these interviews and questionnaires each year.

2. Video-conferencing home visits. Research staff will connect with you via a webcam and a computer or tablet to observe you and your child engaged in a variety of play activities in your home. These visits will take place twice per year, starting about 4 months after you complete the questionnaires, and take about 30-40 minutes each time. You would receive a $25 gift card for each home visit that you complete.

For more information about the study, please contact Adele Dimian, PhD at dimia006@umn.edu.