Families with Special Needs and COVID-19

This study examines how people with special needs and their families across the world have been coping with the administrative, financial and social changes they have likely incurred due to the current pandemic. In particular, we are interested in the stresses that they have faced and the coping and emotion regulation strategies they have employed.

The survey is addressed to parents or caregivers of individuals with special needs including (but not limited to) Williams Syndrome, Down Syndrome, Autism Spectrum Disorder, Non-specified Intellectual Disability and other rare genetic disorders of any age (including adults with special needs). Indeed, we are interested to know whether there is something specific to their and their parents’ experience of the pandemic, perhaps in terms of health issues, coping with stress and social distancing/self-isolation, suspension of institutional support, increased time spent online etc.

The survey is anonymous and will take about 30 minutes to complete. You can withdraw your participation from the study at any point or decide later you don’t want your data to be used, without having to justify your decision. If you are willing to participate, please complete this form as thoroughly as possible.

Take the survey.